Disability Thread

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Disability Thread

Post by ManchVegas » Thu Jul 12, 2018 12:58 am

So, anyone else out there disabled? I've got a friend in the UK that's been on disability benefits for 18 years.

His first advice to me was: Brace yourself. No one will believe you. Everyone is going to think you're faking it.

Truth be told I secretely thought he may have been faking it. Not full out faking it but thinking things like "There must be something he could do to earn a few bucks!"

Unfortunately you realize that's not the case when you get hit yourself.
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Re: Disability Thread

Post by Lost Soul » Thu Jul 12, 2018 1:23 am

A close friend and former co-worker has been on work-related disability for a decade.

They recently cut his methadone pills from six to four to two per day, because of the war on drugs. So prepare for the doctors to get you hooked on something, and then pull the plug on you.

He has adjusted by making some really kick ass pot brownies. The best on earth, imho. I have queried him about his technique- "It's all in the butter".
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Re: Disability Thread

Post by ManchVegas » Thu Jul 12, 2018 1:36 am

Yeah, The doctors won't give me any pain killers and honestly I don't want them. I'm not in agonizing pain. It's just an overall discomfort when I get up and do something followed by exhaustion. Makiing a pot of coffee is a major chore.

I thought I might have found the perfect job. Toll booth attendant on the turnpike. All you do is sit all day. The problem is by the time I would take a shower and get ready and head out to the turnpike I would be exhausted.

It takes me an hour to make a bed. It really sucks and my sypmathies go out to anyone else out there in the same boat.
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Re: Disability Thread

Post by fishface » Thu Jul 12, 2018 1:41 am

Have you considered chronic fatigue / me ?

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Re: Disability Thread

Post by ManchVegas » Thu Jul 12, 2018 1:45 am

Yes, I've thought about chronic fatigue. What's me?
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Re: Disability Thread

Post by muthafunky » Thu Jul 12, 2018 1:59 am

My dad is 10% disabled from a paratrooping accident in the army. You wouldn’t guess he’s disabled.

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Re: Disability Thread

Post by SeamusMcCool » Thu Jul 12, 2018 2:17 am

Disability as far as I know gives you just enough to live on you're pretty much on the poverty line. Getting enough so you don't starve and you have a roof over your head. I don't get why anybody would assume somebody would rather that than a good job with benefits if they could do it . Never mind the stigma that comes with that shitty monthly disability cheque.

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Re: Disability Thread

Post by SeamusMcCool » Thu Jul 12, 2018 2:17 am

We need more empathy in this world.

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Re: Disability Thread

Post by ManchVegas » Thu Jul 12, 2018 2:28 am

Yes, You couldn't really tell by looking at some people. I have a cousin that's been on benefits for years and I've always doubted it. He looks to good. He's in perfect shape and well groomed. That's one of things I've been told though. You cannot let your personal grooming and hygiene go down the drain. My sister was mad that I got my haircut. She's like "You don't spend money on a haircut when you're unemployed and disabled" Actually, just the opposite is true. Everything radiates out from your presonal appearance. You let your hair get shaggy, you stop shaving, let nails become like daggers and the next stop is the state hospital.

That's another thing I've been warned about. No one will ever think you can have anything nice. A trip to Ibiza? You can do that yet you can't work a job? I'm bracing myself for the "BUT YETS" What people don't realize is that at my age I've paid into the system for 4 fucking decades. No one is giving me a handout. It's just the opposite. I've done so many menial low level jobs. Jobs that keep the economy afloat. I deserve twice the amount I'll be getting.

OK. Rant over and thank you Seamus.
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Re: Disability Thread

Post by fishface » Thu Jul 12, 2018 3:00 am

ME is just the fancier medical term for chronic fatigue but I think some people have preferred using ME due to the prejudicial feelings and comments towards 'chronic fatigue' as a term.

Good luck. I have no idea what you're eligible or entitled to but I hope you get all you can. I hate to see people who deserve assistance not getting it because they don't know how to use the system to their advantage. So good luck. Do you have access to an advocate of some kind? I was thinking disabled rights...but any kind of personal advocate, really.

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Re: Disability Thread

Post by ManchVegas » Thu Jul 12, 2018 3:15 am

I'm using Premier Disability. I'm sure they'll take a big fat comission but I don't care. I can't navigate the system alone.
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Re: Disability Thread

Post by Shavenhead » Thu Jul 12, 2018 8:08 pm

I'm deaf in one ear and mentally ill.
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Re: Disability Thread

Post by Shavenhead » Thu Jul 12, 2018 8:08 pm

I'm deaf in one ear and mentally ill.
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Re: Disability Thread

Post by ManchVegas » Thu Jul 12, 2018 8:11 pm

Seriously? I can never tell on here when someone's just trying to take the piss out of me.
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Post by WhosieWho » Thu Jul 12, 2018 8:12 pm

You let your hair get shaggy, you stop shaving, let nails become like daggers and the next stop is the state hospital.
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Re: Disability Thread

Post by simon_in_exile » Thu Jul 12, 2018 8:47 pm

Shavenhead wrote:
Thu Jul 12, 2018 8:08 pm
I'm deaf in one ear and mentally ill.
How long have you been deaf for? And what caused it?
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Re: Disability Thread

Post by simon_in_exile » Thu Jul 12, 2018 8:51 pm

SeamusMcCool wrote:
Thu Jul 12, 2018 2:17 am
We need more empathy in this world.
I’m not the most empathic person out there, but maybe that makes me appreciate it all the more from people who have the drive and patience to help people for scant reward or recognition. Some posters on this board spring to mind.
Meanwhile most people in positions of power and authority are amongst the least empathic - which sort-of got them into those positions in the first place.
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Re: Disability Thread

Post by twodogs » Thu Jul 12, 2018 8:53 pm

Shavenhead wrote:
Thu Jul 12, 2018 8:08 pm
I'm deaf in one ear and mentally ill.
That sounds like early onset adult feline diabetes. You may want to get it checked out.
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Re: Disability Thread

Post by Shavenhead » Thu Jul 12, 2018 8:58 pm

simon_in_exile wrote:
Thu Jul 12, 2018 8:47 pm
Shavenhead wrote:
Thu Jul 12, 2018 8:08 pm
I'm deaf in one ear and mentally ill.
How long have you been deaf for? And what caused it?
Since I was 18. Artillery guns caused it. It's not a disability. You can hear perfectly well with one ear. It's my mental illness which I find most disorientating.
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Re: Disability Thread

Post by Lost Soul » Thu Jul 12, 2018 9:01 pm

You can hear with one ear, but not perfectly. You miss out on all the directionality of a sound unless you rotate your head during the sound.
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Re: Disability Thread

Post by Usher73 » Thu Jul 12, 2018 9:02 pm

Shavenhead wrote:
Thu Jul 12, 2018 8:08 pm
I'm deaf in one ear and mentally ill.
Memory troubles too.

Memory ttoubles too.

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Re: Disability Thread

Post by twodogs » Thu Jul 12, 2018 9:04 pm

simon_in_exile wrote:
Thu Jul 12, 2018 8:51 pm
SeamusMcCool wrote:
Thu Jul 12, 2018 2:17 am
We need more empathy in this world.
I’m not the most empathic person out there, but maybe that makes me appreciate it all the more from people who have the drive and patience to help people for scant reward or recognition. Some posters on this board spring to mind.
Meanwhile most people in positions of power and authority are amongst the least empathic - which sort-of got them into those positions in the first place.
In general successful people are more logical and less emotional.

Here is a fun quiz from the losers at Berkeley.

https://greatergood.berkeley.edu/quizze ... iz/empathy
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Re: Disability Thread

Post by simon_in_exile » Thu Jul 12, 2018 9:14 pm

Shavenhead wrote:
Thu Jul 12, 2018 8:58 pm
simon_in_exile wrote:
Thu Jul 12, 2018 8:47 pm
Shavenhead wrote:
Thu Jul 12, 2018 8:08 pm
I'm deaf in one ear and mentally ill.
How long have you been deaf for? And what caused it?
Since I was 18. Artillery guns caused it. It's not a disability. You can hear perfectly well with one ear. It's my mental illness which I find most disorientating.
I have the same thing - lost the hearing in my right ear approx five years ago (cause unknown). What lost_soul describes is one of the frustrating aspects, and I also get dizzy spells that can last for weeks.
No obvious mental illness though - although one of my best friends has been in and out of hospital with mental illness issues - I’m there for him but it’s hard for me to relate.
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Re: Disability Thread

Post by simon_in_exile » Thu Jul 12, 2018 9:18 pm

twodogs wrote:
Thu Jul 12, 2018 9:04 pm
simon_in_exile wrote:
Thu Jul 12, 2018 8:51 pm
SeamusMcCool wrote:
Thu Jul 12, 2018 2:17 am
We need more empathy in this world.
I’m not the most empathic person out there, but maybe that makes me appreciate it all the more from people who have the drive and patience to help people for scant reward or recognition. Some posters on this board spring to mind.
Meanwhile most people in positions of power and authority are amongst the least empathic - which sort-of got them into those positions in the first place.
In general successful people are more logical and less emotional.

Here is a fun quiz from the losers at Berkeley.

https://greatergood.berkeley.edu/quizze ... iz/empathy
If being successful is defined as having power and authority, then yes. I can think of other definitions though [not a slur on logical, less emotional people by the way - I fall firmly into that bracket].
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Re: Disability Thread

Post by twodogs » Thu Jul 12, 2018 9:36 pm

simon_in_exile wrote:
Thu Jul 12, 2018 9:14 pm
I have the same thing - lost the hearing in my right ear approx five years ago (cause unknown). What lost_soul describes is one of the frustrating aspects, and I also get dizzy spells that can last for weeks.
That could be menieres.

https://www.mayoclinic.org/diseases-con ... c-20374910

Mrs. Twodogs had it in both ears. US doctors prescribed drugs which just made her loopy. We finally found a specialist in Europe who prescribed http://meniett.com/.

They cost a few grand but it worked for her. There have been cases of suicide from not correcting this and there is a theory this is why Van Gogh cut off his ear.
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Disability Thread

Post by 5waldos » Thu Jul 12, 2018 9:42 pm

How about Lyme disease? Have you been tested for that?

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Re: Disability Thread

Post by ManchVegas » Thu Jul 12, 2018 10:09 pm

Waldo. If that was directed to me. Yes I've been tested for lyme and I don't have it.

To Shaven Head if you're being legit my heart goes out to you. Feel free to message me etc. I know I come across as a selfish dick but I'm a good listener. I don't reach out though. People have to come to me.
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Re: Disability Thread

Post by simon_in_exile » Thu Jul 12, 2018 10:14 pm

Cheers twodogs - I’ve seen doctors about it: some say menieres, others not. Either way, it’s annoying but pales into insignificance compared with what other people put up with daily.

Manch - a good friend at university suffered from ME, and she didn’t get a huge amount of sympathy from people. It’s a tough one as there’s no obvious physical sign to other people that something is amiss. On the plus-side, she got through it after a few years, and these days is fully active, healthy and full of energy - I don’t know whether it was a particular routine or mindset or just luck of the draw that worked for her, but the condition isn’t always forever.
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Re: Disability Thread

Post by ManchVegas » Thu Jul 12, 2018 10:34 pm

That's a good point Simon. Things could always be worse. I'm not in agonizing pain 24/7 but I'm not sure I want to live the rest of my life in this condition. I won't pull an Anthony Bourdain though. That was so sad. I really idolized him and then he kills himself. I think that is a very sad way to go. If you want to take that route you do it legally with the help of a doctor and you let your family and friends say their good byes.
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Re: Disability Thread

Post by twodogs » Thu Jul 12, 2018 11:36 pm

Some people claim some strains of marijuana can help with chronic fatigue, others say it causes it but it still may be worth a try if you haven't already.
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Re: Disability Thread

Post by ManchVegas » Thu Jul 12, 2018 11:45 pm

Yes, I've heard good things about that. My mom thinks I should ask my Dr. about it. I just need some functionality for a month or so. LOL. If I could get the old industrious me back for a few weeks it would be wonderful. Get the lawn mowed. The house picked up and ready for sale etc.

Thanks for the suggestions. Whether they're directed at me or not they always seems to help.
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Re: Disability Thread

Post by twodogs » Fri Jul 13, 2018 2:21 am

ManchVegas wrote:
Thu Jul 12, 2018 11:45 pm
Yes, I've heard good things about that. My mom thinks I should ask my Dr. about it. I just need some functionality for a month or so. LOL. If I could get the old industrious me back for a few weeks it would be wonderful. Get the lawn mowed. The house picked up and ready for sale etc.

Thanks for the suggestions. Whether they're directed at me or not they always seems to help.
Have you tried a homeopathic doctor yet? They are more likely to prescribe cannabis than a traditional doctor.

If the fatigue is sleep related try these tips http://www.health-host.co.uk/fighting-f ... ired-time/.

Long summer days and short nights might be part of the problem and some municipalities have installed blue LED street lights that are known to affect sleep quality.

https://www.mnn.com/health/fitness-well ... -for-sleep

Lastly most churches are crawling with do gooders looking for a cause so call one and ask for help with your house. Apparently they get points or something for that.
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Re: Disability Thread

Post by ManchVegas » Fri Jul 13, 2018 2:24 am

Thanks for the suggestions! I forgot about the church aspect. I remember being a do gooder back when I was a youth.
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Re: Disability Thread

Post by Manny » Fri Jul 13, 2018 3:03 am

I have met many people who are disabled, but not my friends, relatives, or anyone close. I guess that I am pretty lucky that the people I know are in good health.

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Re: Disability Thread

Post by shilgia » Fri Jul 13, 2018 6:52 am

Before we go down the path of chronic-fatigue remedy suggestions, didn’t you say that one of the tests you did did show a muscle issue? I thought chronic fatigue/ME was something that wouldn’t show up in any tests, suggesting that what you actually have is something else. (But I’m not a doctor and definitely could be wrong about this.)

What did your doctor say after you got the results back after the initial tests? If insurance/copays weren’t an issue, what would the next steps toward diagnosis be?

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Re: Disability Thread

Post by Shavenhead » Fri Jul 13, 2018 7:13 am

Manny wrote:
Fri Jul 13, 2018 3:03 am
I have met many people who are disabled, but not my friends, relatives, or anyone close. I guess that I am pretty lucky that the people I know are in good health.
Sorry, who the fuck are you?
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Re: Disability Thread

Post by VinnyD » Fri Jul 13, 2018 11:44 am

Shavenhead wrote:
Thu Jul 12, 2018 8:58 pm
simon_in_exile wrote:
Thu Jul 12, 2018 8:47 pm
Shavenhead wrote:
Thu Jul 12, 2018 8:08 pm
I'm deaf in one ear and mentally ill.
How long have you been deaf for? And what caused it?
Since I was 18. Artillery guns caused it. It's not a disability. You can hear perfectly well with one ear. It's my mental illness which I find most disorientating.
You can hear with one ear but not pefectly well. A friend of mine who was deafened in one ear as a Marine gunner in Vietnam gets a disability payment. I think they called it a 20% disability.

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Re: Disability Thread

Post by ManchVegas » Fri Jul 13, 2018 11:53 am

Hi Shilgia, My doctor wants to send me for additional lab work and has scheduled a full physical exam. She thinks I might have RA or MS but really needs to do more work. She has agreed to underwrite my disability claim. The result of the one failed lab test state: This pattern is most consisent with muscle injury including intramuscular injections, post operative states, traumatic injuries, strenuous physical activity and various myopathies.

WTF is myopathies?

If money weren't an object the logical thing to do would be continue going to the doctors and finding out what's wrong with me first then evaluate my options.
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Re: Disability Thread

Post by BeatRaven » Fri Jul 13, 2018 12:02 pm

My medical degree and crystal ball are in my other sweat pants, but:

After my divorce, I had something akin to severe chronic fatigue syndrome that had thyroid problems at the root. I could walk downstairs to a cafe, eat a mozzarella sandwich and an orange juice, but then I'd go back upstairs to lie down like I had walked 100 miles. I thought I was dying. I was ready. I started meditating along the lines of The Tibetan Book of the Dead, which I found really unhelpful.

And then very slowly, I got better. I remember wanting a second mozzarella sandwich in the same day as the big turning point. It was about 10 months from complete thyroid crash to being able walk a quarter mile, with the second mozzarella sandwich breakthrough occurring around month six.

Consider avoiding pot. It sapped my energy even more -it's famous for that tho, no? Just want to point out that a bend in the river is not necessarily the end of the river. Plan for disaster, but don't rule out luck and healing as outcomes.

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Re: Disability Thread

Post by ManchVegas » Fri Jul 13, 2018 12:16 pm

Thanks Raven. That's how I feel and the problem is I don't fully know my limitations. I want to mow a patch of lawn but if that takes me out for 2 days I'm fucked. I've got guests checking out and in today.

Yeah, I'm not a big fan of weed. My doctor gave me Prednisone but all that did was give me a raging hardon 24/7. They should really put that as a warning label on the bottle!
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Re: Disability Thread

Post by BeatRaven » Fri Jul 13, 2018 12:26 pm

I used to brush my teeth when I got up to take a piss just in case I was too exhausted to do so later on. Fatigue had so many layers and variations. Being tired all the time is an altered state in itself -which is why I avoided other altered states.

Def. keep a mental diary of what makes you tired, what food helps and doesn't, how the tiredness shifts around throughout the day.

For me, that time of solitude and being very still had a lot of benefits. I expect that some growth and perspective will come out of your own current troubles.

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Re: Disability Thread

Post by twodogs » Fri Jul 13, 2018 12:32 pm

Manny wrote:
Fri Jul 13, 2018 3:03 am
I have met many people who are disabled, but not my friends, relatives, or anyone close. I guess that I am pretty lucky that the people I know are in good health.
Same here, knock on wood.
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Re: Disability Thread

Post by ManchVegas » Fri Jul 13, 2018 12:38 pm

Lol. Raven. I take it you were so tired you had to sit down to take a piss? That's what I'm experiencing.
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Re: Disability Thread

Post by twodogs » Fri Jul 13, 2018 12:41 pm

ManchVegas wrote:
Fri Jul 13, 2018 11:53 am
WTF is myopathies?
https://www.ninds.nih.gov/Disorders/All ... ation-Page

Beatraven gave some good advice. Keep track of everything you eat and how it affects you. A homeopathic doctor may be able to help with that as well and never discount the power of meditation and laughter.
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Re: Disability Thread

Post by Lost Soul » Fri Jul 13, 2018 12:44 pm

Shavenhead wrote:
Fri Jul 13, 2018 7:13 am
Manny wrote:
Fri Jul 13, 2018 3:03 am
I have met many people who are disabled, but not my friends, relatives, or anyone close. I guess that I am pretty lucky that the people I know are in good health.
Sorry, who the fuck are you?
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Re: Disability Thread

Post by Chip_Oatley » Fri Jul 13, 2018 12:45 pm

Regarding changing over the guest suite--it sounds like it's worth paying someone to do that cleaning/bed changing for you, at least in the short-term.

I don't know if you charge a cleaning fee; I find that people who charge more than a perfunctory $20 per stay leave the place filthy, whereas those who incorporate the charge in the main overnight cost know what the hell constitutes a decent cleaning.

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Re: Disability Thread

Post by BeatRaven » Fri Jul 13, 2018 12:46 pm

Nah, I could take a piss while standing and leaning against the top of the toilet.

I promise to never lord it over you.

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Re: Disability Thread

Post by ManchVegas » Fri Jul 13, 2018 12:59 pm

Thanks everyone for all of your support. I should have started posting at the onset of my illness.

Chip, no, no cleaning fee. I'm actually considering having my current guests help me clean in exchange for a late check out.

Raven, that's the worse thing for me. Having to sit down to piss. I never realized how convenient the stand up method is until it was taken away.
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Re: Disability Thread

Post by BeatRaven » Fri Jul 13, 2018 1:18 pm

I didn't sit because of fear I wouldn't have the knee-oomph to get back up.

So you're already one up over my deal. Keep a-goin' with that.

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Re: Disability Thread

Post by ManchVegas » Fri Jul 13, 2018 1:27 pm

Thanks for that my brothah!
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